Protection of the rights of patients with rare diseases in the era of the COVID-19 pandemic31/08/2022
The National Organization for Rare Diseases of Serbia NORBS is the recipient of a grant within the grant scheme Grants for urgent support for monitoring the work of institutions, advocacy and informing citizens regarding the COVID-19 pandemic.
Within this grant scheme, in addition to NORBS, another 15 civil society organizations received grants. The aim of the call was for civil society organizations, media and informal groups to involve citizens in activities related to the Covid-19 pandemic, through advocacy activities, access to information and informing citizens, as well as monitoring the work of institutions. The project was implemented in cooperation with Legal Scanner. We spoke with Stefan Živković from NORBS and Marina Mijatović from Law Scanner about the project, its challenges and results, as well as all the experiences for the organization brought by this project.