Hrabriša presented the results in the Assembly of the City of Novi Sad01/03/2023
The results of the activities implemented within the project “Improving health care mechanisms for children with rare neurotransmitter diseases, developmental difficulties and chronic diseases in preschool institutions” were presented yesterday at a conference in the Assembly of the City of Novi Sad.
The event was attended by the member of the City Council for Education, Dina Vučinić, who pointed out that the City of Novi Sad pursues a socially responsible policy and that, since 2016, the city’s budget has allocated even 115 million dinars.
– In addition to the fact that, in this specific case, Novi Sad is an example of good practice, we also invest in education and allocate seven billion dinars from the budget for that area. The stay of children in the kindergartens of PU “Radosno detinjstvo” is free, and in the last ten years we have built five new facilities and we take care every day to improve the stay of children in kindergartens – said Dina Vučinić and added – In Novi Sad, we have about 1500 children suffering from rare diseases and we are here today because we want to hear what we can do to help them and their parents, during daily functioning, giving therapy and the like. We have to solve such things systemically, and not depend on the goodwill of individuals.
The project “Improving health care mechanisms for children with rare neurotransmitter diseases, developmental disabilities and chronic diseases in pre-school institutions” is implemented by the Association “Hrabriša”, with the support of the Swiss Government project “For an active civil society together” whose goal is an active civil society in which citizens are more participate in the decision-making process, especially at the local level. Councilor Marko Rakić was present in front of the project “For an active civil society together”. The president of the “Hrabriša” association, Ivana Badnjarević, expressed her satisfaction that the topic of rare diseases is no longer only about diagnosis and treatment, but about the right of children with rare diseases to quality education.
– I believe that children with rare neurotransmitter diseases and other chronic non-communicable diseases have the right to grow up with their peers in an environment that stimulates their development and that in that environment they should receive adequate health care, i.e. receive their therapy at a certain time. I am very glad that we are cooperating with the City Administration for Education and PU “Joyful Childhood” – said Ivana Badnjarević.
According to Branka Čonkić, head of the PHC service of PU “Radosno detinjstvo”, there are currently no children with rare diseases enrolled in that institution, but the kindergartens are attended by children with chronic non-communicable diseases to whom the employees provide the necessary support.
– Every child, regardless of health status, has the right to an educational process. We are here to respond to all challenges and to solve everything in the best way, in the interests of the child – emphasized Branka Čonkić.